What Are The 5 Stages Of Palliative Care? When children are diagnosed with a life-changing illness, family members and caretakers often have to make extreme changes to their lifestyles. A diagnosis can be scary, but there are many different services and programs to help families in stressful times, including pediatric palliative care. What is Pediatric…
What is Spinal Muscular Atrophy? Spinal Muscular atrophy (SMA) is a genetic disorder affecting motor neurons that control voluntary muscle movement. SMA causes the brain to stop sending messages that control muscle movement due to the breakdown of nerve cells, and consequently, muscles weaken due to inactivity. SMA most commonly affects babies and young children,…
[New York Times Magazine] Hospice homes help families with the unimaginable.
Dr. Kathy Hull was awarded the 21st Fervent Global Love of Lives Award in 2018 by the Chou Ta-Kuan Cultural and Educational Foundation. The award recognized her pioneering work in founding George Mark Children’s House
[eHospice] A recently released TED Women TED Talk by Kathy Hull, founder of the first freestanding paediatric palliative care centre in the United States, eloquently describes her reasons for opening George Mark Children’s House in 2004.
[Seven Ponds] An interview with Teri Rose, the Medical Outreach and Community Relations Manager for George Mark for a very enlightening and touching interview about the pediatric palliative care movement.
[Complex Child] These homes, which are available to families from the time of diagnosis through and beyond a child’s death, are places for families to get a break, and children to receive emergency or symptom-based relief throughout their lifespans.
[CNN] Charles Daniel would live only two more years. It was time enough to change everything — and everyone
The George Mark Children’s House is the first dedicated pediatric inpatient hospice facility in the United States and is feeling the echoes of the financial crisis.
Take a Tour of the House
